What is Epilepsy? fact sheet (Epilepsy Australia)

Seizure first aid poster (Epilepsy Australia)
Epilepsy and exercise (Better Health Victoria)
Sports and activities (Epilepsy Australia)
Epilepsy and lifestyle issues (Epilepsy Australia)
Seizure First Aid video (Epilepsy Australia)

Treatments (Epilepsy Australia)
Management plan template (Epilepsy Tasmania)
Midazolam action plan template (Epilepsy Tasmania)
Seizure diary/record template (Department of Health, Tasmania) if you require an accessible version of this document please contact the clinic
Vitamin D fact sheet (Royal Children's Hospital) If you are on epilepsy medication for a long time you may need a vitamin D supplement.

Supported self-management

Moving On Up (Tasmanian Primary Health Network together with the Tasmanian Health Service) – Learning to manage your own condition while you are supported by your family, carers and health care team, is important as you grow and work towards independence. Moving On Up is a Tasmanian resource that provides learning goals for different ages

What is an EEG? fact sheet (Royal Children's Hospital)
What is a MRI? fact sheet (Royal Children's Hospital)
Genetics - what is it? fact sheet (Royal Children's Hospital)

Epilepsy Tasmania - can provide information and support to anyone with epilepsy or to those who care for people who have epilepsy. They can provide seizure management training for school staff or other carers so they know how to support you.
Carers Tasmania – provides support to people caring for others who have medical or disability needs.

International supports

Dravet Foundation - is an international group that provides information and support for people with Dravet syndrome.

LGS Foundation -is an international group that provides information and support for people with Lennox-Gastaut syndrome.

The Loop - Your Neuromuscular Resource Hub - Condition provides condition specific information and advice for management and support. Links to many other sources of information and support.  The Loop links to many other useful sources of information and support.
Australian Neuromuscular Disease Registry -  is a national clinical registry for children and adults to improve the understanding of neuromuscular disease. Supporting the development of, and access to, new therapies.

The Loop – Your Neuromuscular Resource Hub – Equipment provides information about equipment and how assistive devices can help you achieve your goals.

The Loop – Your Neuromuscular Resource Hub – Living Life has information about lots of areas of life including transport, travel, relationship, education and employment.

The Loop – Your Neuromuscular Resource Hub – Health Support provides information about possible supports and therapies, these are also discussed in condition specific information.

Royal Children's Hospital -  Vitamin D fact sheet. You may need a vitamin D supplement to support healthy bone development.

Supported self-management

Moving On Up (Tasmanian Primary Health Network together with the Tasmanian Health Service) – Learning to manage your own condition while you are supported by your family, carers and health care team, is important as you grow and work towards independence. Moving On Up is a Tasmanian resource that provides learning goals for different ages

What is a MRI? fact sheet (Royal Children's Hospital)
Genetics - what is it? fact sheet (Royal Children's Hospital)

Other neurological tests or investigations

What is a CT scan? fact sheet (Royal Children's Hospital)
What is a lumbar puncture? fact sheet (Royal Children's Hospital)

Muscular Dystrophy Tasmania – is a local organisation that provides support to people with all types of neuromuscular conditions.
Charcot-Marie-Tooth Association Australia– is a national organisation providing support to people with CMT
Save Our Sons Duchenne Foundation – is a national organisation providing support to people with Duchenne and Becker muscular dystrophy.
Carers Tasmania- provides support to people caring for others who have medical or disability needs.